"Help Our Girls", The Beg Family

“Need your prayers for Abeerah today. She having more frequent seizures this week. Thursday she had a seizure in school. Friday two seizure one seizure after other in school. And today she had another seizure at home which really shook me up. She bit on her tongue again and bleed during seizure. After 5 minutes, inserting DIastate she relief herself and fall a sleep. Unfortunatly Bilal was there with her watching and saw her. He got really upset and thought she is going to die and call 911. With taking care of Abeerah, i had to calm him down too. It had left a impact on him. I hate MPS. Some times moments comes in your life that you feel so helpless. Pain just shoot through your heart like some one stab you, stomach feel pains and eyes can't hold in the flow of your tears. Then what you do in times like this????

Moments like that comes a lot in my life and i live through holding my faith tight. I believe neither the good things of this world are forever, nor the bad things eternal. We are here for a short time. Pains and suffering are test and trial for some people. Allah allows some people to suffer in order to test their patience and steadfastness...” (continued here)

Can you imagine the joy after giving birth to three beautiful daughters and watching them grow into their infant years happy and like any other normal kid their age? Then suddenly their health begins to deteriorate and you’re disappointed time after time as you take them to numerous doctors to find out what is wrong, finally discover that the different diagnosis you’ve been getting are all wrong and your children are suffering from a rare, fatal illness? Your child goes from being happy and playful to being difficult to discipline. They become extremely active and suffer sleeping problems. To soothe themselves they begin chewing on anything they can grab, sometimes their own clothes or hands. Gradually language and understanding will be lost and so will the ability to properly use the bathroom. Then it will become difficult to feed themselves, walk, and potentially they can even lose the ability to walk altogether. And to top if off, they tend to have sudden seizures on and off.

…No, you can’t imagine this. Who could possibly imagine this happening to their child? For a friend of mine this is her reality, this is her day to day life. Not one or two, but all 3 of her lovely daughters suffer from Salfilippo syndrome (MPS). In short, these girls are basically missing a specific enzyme in their body to break down sugar molecules. Instead of these molecules being broken down and disposed, they store themselves into cells, thus causing progressive damage to the child.

Sister Tayyaba is one of the most humble and sweetest sisters I know. How she’s been dealing with this for almost a decade, I don’t know. She also has 2 sons, one which is autistic. Truly she is the bravest and strongest mother I know, may Allah always give her strength, ameen! I have no idea how she keeps up with her two sons and her sick daughters, making sure Ammar gets the proper attention he needs because of his autism, finding time to make Bilal feel like a normal kid, changing the girls diapers, feeding them, bathing them, cleaning up, making meals… just finding time to sit and clear her head… subhanAllah.

You can learn more about Tayyaba and her family by reading her journal I linked at the end of the journal excerpt above. Please take the time to navigate around the site and learn more about MPS and enjoy the pictures of her kids. And please please pleeeease sign her guestbook! Words of encouragement, love and du’as really do go a long way!!

She has a paypal link for donations, please send something to help with their whomping medical bills. I tried using the link and it didn’t work, please let me know if it works for you or not. She does have her address there anyway, checks can be sent to:

"Help Our Girls"

216 Manhattan Ave

Teaneck, NJ 07666

If you’d like to send something through paypal and the link doesn’t work, you can send it to me and I’ll get it to her, she lives a few blocks away from me alhamdulillah, you can even keep in contact with her to be sure she gets it. I hope most of you trust me since I’ve been collecting around $25,000 for a while for this project too. MashaAllah she is a sweet sister. I wish I knew more about her family before my son was born so I could go over and lend a helping hand. I know some sisters who would go there and help mashaAllah, I dunno how they even do it. I think I would break down in tears, but in time I’m sure you get used to it and know you’re doing something good.

What bothers me is cases like these go forgotten. I know whenever any of her daughters are in the hospital sometimes kids in the area make cards for them and all… but aren’t they suffering too when they’re home? Don’t they need that love and affection in their home as well? I’m sure everyday brings a new hurdle to Tayyaba and her husband brother Zarrar.

Please post post a link back to my blog or her site on your page or as your face book status or profile info or anything to make people aware of what’s going on, in hopes that they may contribute something - even if it is also just to pass the word along.

SubhanAllah it makes you think how simple our days are and how we may be tested from time to time, but for others their entire life is a test… and we only pray that Allah gives them the best in the akhirah for everything they are enduring here inshaAllah. Again please keep the Beg family in your du’as and pass the word along, please sign the guestbook and send even if it’s $5 to help the girls out. It would be nice to even form a habit of sending $5 every month or something like this. Because once you give your contribution we shouldn’t forget them, because there will always be the need for help. Let’s not be of those people who hear of something, get emotional about it, and forget it the next week.

JazakumAllahu khayran and may Allah grant ease and happiness to all families suffering like this but make the best of their days, ameen!